Speaking about the moment she was told Olly had Down's syndrome, she said: ' We got called back into A&E and the doctor said "I’m just going to run some tests for Down's syndrome". 'She said "our worry is the mother, the baby is fine" and I guess they were just busy, you should never ever ignore a midwife I think.' 'In retrospect they’d asked for the doctors to come and see but August is a time when in NHS hospitals lots of new doctors start and I had had a bad C-section so they’d called for the paediatrician to come and have a look at Olly and she had refused. So they already knew I think, the health visitors knew and they were cross with the doctors for not having spotted it. I said actually I’ve managed to get him to feed so I’d rather stay here. When Olly was 10 days old, he was taken back to hospital due to his significant weight loss.īeloved: Sally said although she was initially 'devastated', her and her family's lives are more 'meaningful' for having Olly, and offered advice to parents of children with Down's syndrome 'But my mother knew, she didn’t know he had Down's syndrome but I remember my mother in the hospital saying "he’s not gripping".' So in terms of lifting his head and things like that so I could see that there was a massive difference. 'His baby could already do more at three weeks old than Olly could at three months. So that Christmas, it was so upsetting because we had these two babies next to each other on the bed. She said: 'My brother had his second child three months after I had Olly. Sally said she released the magnitude of Olly's condition when she saw her brother's newborn child next to her son. Sally said: 'It was a really happy time, those 10 days, but quite worrying because he wasn’t feeding and he was losing weight. Olly wasn't diagnosed with Down's syndrome until he was 10 days old, with the newborn not feeding and rapidly losing weight, dropping from 8lb to 3lb. So I tried to turn him, have him turned, which was the single most painful thing and that didn’t work so I ended up with a caesarean 'Olly didn’t turn, and that’s quite common with kids with Down's syndrome because they’ve got poor tone. ![]() Children: Sally said she wanted Olly to have two siblings because she 'didn't want to leave one sibling as a carer' and wanted the siblings to have each other to talk to (pictured with sons Olly Luke and Tom in 2018)
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